NEW: Families Throughout the U.S. Celebrate World Hemophilia Day
Tuesday, April 17, 2012
Today, Tuesday, April 17, tens of thousands of families across our nation and around the world are celebrating World Hemophilia Day to raise awareness of bleeding disorders.
“World Hemophilia Day brings public awareness about bleeding disorders and encourages the development of improved treatment,” said Kimberly Haugstad, Executive Director of Hemophilia Federation of America (HFA). “Worldwide, 1 in 1,000 women and men have a bleeding disorder and 75% of them still receive inadequate or no treatment at all. Today is about shining a light on a disorder too few understand, and too many are affected by. HFA stands with thousands of families around the world today in calling for better treatments and quality of life for those affected by bleeding disorders.”
World Hemophilia Day focuses attention on the importance of comprehensive health care. Such care is at the heart of major changes currently happening to our health care system and can positively impact the health of families.
GET THE LATEST BREAKING NEWS HERE -- SIGN UP FOR GOLOCAL FREE DAILY EBLASTComprehensive care is particularly important totreating the physical, emotional, psychological, social, and educational needs of people with hemophilia and other bleeding disorders.
An estimated 3 - 5 million Americans have a bleeding disorder, including about 20,000 with hemophilia –- affecting all ethnic and economic groups.
